INTERNATIONAL

HHT FOUNDATION INTERNATIONAL
P.O. Box 329
Monkton, Maryland 21111 USA

Tel: 410-357-9932
Fax: 410-357-9931
Email: hhtinfo@hht.org
Website: www.hht.org

CANADA

TORONTO
Website: Toronto HHT Center
St. Michael’s Hospital
30 Bond Street
Office 2 Bond, Room 027
Toronto, Ontario
Canada M5B 1W8
Adult HHT and Pulmonary AVM Center
Coördinator: Dr. Marie Faughnan 416-864-5412
HHT Genetics Team
Coördinator: Regan Klatt, Genetics Counselor
416-813-6389

Pediatric HHT Clinic
Hospital for Sick Children
Director: Dr. Ian MacLusky (pediatric respirologist)
416-813-6248

DENEMARKEN

Svendborg, Denmark
Contact: 045-6320-2120 or 045-6320-2127

DUITSLAND

Philipps-University Marburg
Dep. of Otorhinolaryngology
Deutschhausstrasse 3
D-35037 Marburg
Tel: 49-6421-2866808.
Email: zapf@med.uni-marburg.de

HOMBURG
Univ.-HNO-Klinik
D-66421 Homburg
Saar, 49
Contactpersoon: Dr. med. Urban W. Geisthoff
Tel: 49-(0)-6841-162-2900 (phone central)
fax: 49-(0)-6841-162-2997 (secretary)
email: hnougei@uniklinik-saarland.de or Urban.Geisthoff@uniklinik-saarland.de
website: TSHG(Telangiectasia Self Help Group for German-speaking countries)
website: HHT Germany

FRANKRIJK

LYON
Service De Genetique, Hotel Dieu
Quai Jules Courmont
69288 Lyon Cedex 02
Contactpersoon: Henri Plauchu, M.D.
Tel: 4-72-413295

PARIJS
Consultation pluridisciplinaire Maladie de Rendu-Osler
HOPITAL AMBROISE PARÉ
9, avenue Charles de Gaulle
92104 BOULOGNE BILLANCOURT CEDEX
Tel: : +33 0149094432
E-mail : benedicte.chesneau@apr.aphp.fr

IERLAND

website: HHT Ireland

CORK
National HHT Centre
Mercy University Hospital
Grenville Place, Cork
Ierland
Coördinator: Margaret Murphy
Tel: 353 21 2305040
email: margaret@hht.ie
Website: The Grace Nolan Foundation Irish family support web site

ITALIE

BARI
Dipartimento Di Medicina Interna E Medicina Pubblica (Dimimp)
Universita Policlinico
Piazza G. Cesare 70124 Bari, Italy
Contact: Prof. Carlo Sabba M.D.
Tel/Fax: 39 080-5478708
email: C.sabba@dimimp.uniba.it

CREMA
Gastroenterologia ed Endoscopia Digestiva
Ospedale Maggiore
Via Macallè 1
26013 CREMA , ITALY

PAVIA
Genetica Medica
Università di Pavia
Via Forlanini 14
27100 PAVIA , ITALY
Coördinator: Dr. Elisabetta Buscarini
Phone 0039 0373 280422 / 280726 (secretary)
Fax 0039 0373 280654
email: ebuscarini@rim.it
website: Fondazione Italiana HHT (Italian HHT Patient Group)

ISRAEL

Israeli Patient Support Group
Dr. Meir Mei-Zahar
Tel: 050-6-417187
Email: hht-issg@yahoo.com

JAPAN

AKITA
Akita University School of Health Services
Department of Physical Therapy
1-1-1 Hondo, Akita, 010-8543 Japan

Contact: Takanobu Shioiya, M.D., Ph.D.
Tel: 81-18-884-6110 & 81-18-884-6531

SPANJE

TORRELAVEGA
Hospital Sierrallana (Servicio Cántabro de Salud)
Servicio de Medicina Interna
Barrio Ganzo s/n
39300 Torrelavega (Cantabria) Spain
Tel: 942 847400
Contacts: Dr. Zarrabeitia (rzarrabeitia@hsll.scsalud.es)
Dr. Pérez del Molino (ssetienb@meditex.es)
Website: Support group for HHT patients of Spain and Portugal.
E-mail: renduosler@asociacion-hht.org

VERENIGD KONINKRJK

LONDEN
Hammersmith Hospital
Londen, Engeland
Contact: 44.208.383.3269
Website:  TSHG(Telangiectasia Self Help Group in Britain)

HULL
HHT Treatment Clinic
Contactpersoon: Hillary Finnis
Tel: +44 (0) 1482 674608
Email: hht@hey.nhs.uk

VERENIGDE STATEN

AUGUSTA
Medical College of Georgia
Division of Pulmonary Medicine
1200 15 Street
BBR5513
Augusta, GA 30912-3135 USA
Contactpersoon: Jody Kenny
Tel: 706-721-6791
Fax: 706-721-3069
Email: jkenny@mail.mcg.edu
center director: Dr. James Gossage

PHILADELPHIA
University of Pennsylvania Health System
Department of Medicine
Division of Medical Genetics
Room 538 Maloney Bldg.
3400 Spruce Street
Philadelphia, PA 19104-4283
Contactpersoon: Barbara Bernhardt/Dr. Reed Pyeritz
215-662-4740

PORTLAND
Oregon Health and Science University
Mailcode UHN67
3181 S.W. Sam Jackson Park Road
Portland, OR 97239
Toll Free: 888-222-6478 ext 7644
Direct: 503-494-7644
Fax: 503-494-6465

ROCHESTER
Mayo Clinic
Division of Pulmonary & Critical Care Medicine
200 First Street SW
Rochester, MN 55905 USA
Contactpersoon: Dr. Karen L. Swanson & Dr. Michael J. Krowka
Tel: 507-266-0416
Fax: 507-266-4372

SAN DIEGO
University of California Medical Center
200 West Arbor Dr.
San Diego, CA 92103
Contactpersoon: Julie Fisher/Dr. Frank Miller
888-770-0296
619-543-7965
Contactpersoon: Eric Rosenthal, Phd, ScM
Genetics Counselor
858-822-2124
Website: University of California Medical Center Faculty
Website: www.medicine.ucsd.edu/Radiology
Website:  www.ucsd.vasculardomain.com

ST LOUIS